WHO says creating panel to study gene editing

The World Health Organization said Monday it is creating a panel to study the implications of gene editing after a Chinese scientist controversially claimed to have created the world's first genetically-edited babies.

"It cannot just be done without clear guidelines," the head of the United Nations health agency, Tedros Adhanom Ghebreyesus, told reporters in Geneva.

"WHO is putting together experts and we are working with member states...to discuss the standards and guidelines that can cover the ethical and social safety issues," added Tedros, a former Ethiopian health minister.

Tedros made the comments after a medical trial, which was led by Chinese scientist He Jiankui, claimed to have successfully altered the DNA of twin girls, whose father is HIV-positive, to prevent them from contracting the virus.

His experiment has prompted widespread condemnation from the scientific community in China and abroad, as well as a harsh backlash from the Chinese government.

Tedros said WHO was in the process of setting up the panel. He did not however characterise the initiative as a direct response to the Chinese trial.

He also declined to speculate on whether WHO could envision a future where some form of gene editing could offer public health benefits.

The panel will start with "a clean sheet," Tedros said. "They can start by asking 'should we even consider this?"

The group will include academics as well as WHO and government medical experts, he added.

"We have to be very, very careful...We should not go into gene editing without understanding the unintended consequences."

Last week, the Chinese ministry of science and technology stressed its opposition to the gene-editing baby experiment, and demanded a halt to the "scientific activities of relevant personnel".

The Chinese scientist's claims were "shocking and unacceptable" and breached "the bottom line of morality and ethics that the academic community adheres to", vice minister Xu Nanping told state broadcaster CCTV, warning that it may have broken the law.

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What are the ethics of baby gene-editing?
Paris (AFP) Dec 1, 2018
A Chinese scientist's stunning claim he has pioneered the world's first genetically modified baby has suddenly made the eternal debate over ethics and emerging scientific capabilities pressing and real. Should everything that becomes technically possible be carried out? For most ethicists the answer is no - but the tricky part is whether it can be prevented. "It's obvious that everything that is technically feasible is not ethically desirable," said Cynthia Fleury, a member of the French Ethic ... read more